Time to Hold Alzheimer’s Association Accountable

The U.S. Alzheimer’s Association provides critically important support services, education, programs, and referral services to countless individuals living with dementia, their families, and care professionals. It is making a real and meaningful difference in the lives of these people.  However, over the years, the association engaged in a series of unhelpful and harmful activities for […]

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In Their Own Words: Family Members of Older Adults Who Died After Being Injured During Resident-to-Resident Incidents in Long-Term Care Homes

The phenomenon of harmful resident-to-resident incidents in long-term care homes is largely invisible. While over 40 studies examined it to date, the voice of family members of residents who died after being injured during these incidents remains mute. The blog post aims to make first steps in bridging this knowledge gap and encourage action to address this phenomenon and keep residents safe.

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What I’ve Learned About Grandma’s Memory

The story is told from the perspective of a 10-years-old African American girl about her grandmother who lives in advanced stages of Alzheimer’s disease in a nursing home. The granddaughter is told that there is no point of visiting her grandmother because “she is no longer there.” Her love for her grandma compels her to visit her. Their visits may help shift perceptions from stigma to hope.

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An Agency in Need of Transparency: New York Health Department Must Release Mistreatment Investigation Reports in Adult Care Facilities / Assisted Living 

“By not asking for the data to which we are entitled, we sacrifice our ability to learn what our government is doing. Real transparency is more than waiting for the government to hand out data to us. Real transparency involves demanding data from the government and fighting, if necessary, to force the government to provide […]

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Trust at Stake: Alzheimer’s Association’s role in FDA’s approval of Aduhelm

* A reflection on STAT article: Joseph, A. (June 16, 2021). Q&A: The CEO of the Alzheimer’s Association on the approval of Aduhelm – and why critics should stop dwelling on the decision. Link: https://www.statnews.com/2021/06/16/qa-ceo-alzheimers-association-on-aduhelm/  A lot has been said and written in recent weeks about the FDA controversial approval of the drug Aduhelm and the […]

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